When Insurance Denies Tysabri

Blue Cross Blue Shield of Michigan denied the request and appeal to use Tysabri to treat my Multiple Sclerosis

I am so over this relapse. I want to wake up from this bad dream and never sleep again. I need to take care of my kids. I need to be present for my husband. I need to get to a place where I am able to return all of the acts of kindness I have received. This relapse has taken just about everything ... [ Read More ]

Managing a Relapse with Steroids

Michael and Maverick at the Institute for Neurological Disorders during my steroid treatment

It all began on February 5th... That Thursday will likely haunt my dreams for quite some time. It will serve as the traumatic reminder that I am dealing with something very real despite looking 'normal'. I might not let Multiple Sclerosis define who I am but it sure plays a large and in charge ... [ Read More ]

The Final Baby

feeding my baby while getting a steroid infusion

Pregnancy is the magic pill for Multiple Sclerosis, they say. Your hormones will protect you for 6-8 weeks after delivery, they say. In a perfect world, sure. But then something unexpected happens. Instead of pregnancy la-dee-da, they say you are 'unusual' and should really consider your ... [ Read More ]

Feeling Lost

coping with a multiple sclerosis relapse after having a baby

I never imagined 'do you want to end up a mom in a wheelchair' would ever be this real. This close. Being confined to my bed with the highlight of my day being going downstairs to eat dinner with my family wasn't exactly the push present I was shooting for. I was thinking more like a shiny new 105mm ... [ Read More ]

Life in a Multiple Sclerosis Relapse

Moms in a Multiple Sclerosis relapse manage however they can

I am a prisoner of Multiple Sclerosis. A prisoner of my own body. Just this afternoon I convinced my eager toddler he shouldn't shower with me because my legs were tired. When he asked why, I told him I didn't want to fall and hurt him. A sentence no parent should ever have to tell their ... [ Read More ]

Multiple Sclerosis and Breastfeeding

Breastfeeding before a Multiple Sclerosis relapse made me stop

I did it. I made the phone call that will sever our days of breastfeeding and all I can do is lay here as you sleep and cry. And I mean straight up ugly cry. I didn't want to make to make the phone call this early but walking is no longer on my list of daily tasks. It wasn't supposed to end like ... [ Read More ]