I don’t even know where to begin explaining my absolute disappointment in my body right now. I have Multiple Sclerosis and it’s been 5-6 years since I was diagnosed. I was lucky enough to go on a very aggressive drug. Tysabri, right away and only have one bad relapse. Well during my pregnancy you wouldn’ t have even guessed I had this disease. Apparently there is a hormone present that makes it all just vanish for the duration of the pregnancy! It was a beautiful thing for sure.
Well talking with my neurologist during my pregnancy he said that I could possibly get 8 weeks postpartum of protection from this hormone as well. Boy was he way off … I got 2 weeks. I got 2 weeks of no symptoms after Michael was born. At 2 weeks symptoms came back to where I noticed them but I could still manage. At 3 weeks the symptoms came back where my family was concerned with me being home alone with my baby. So in the 4th week I made my neurologist appointment.
That day I pumped a bottle on my drive down to the appointment since I would have to do a 24 hour pump and dump because I would be getting a MRI and an infusion of Solumedrol (steroids). We were there FOREVER! My Mother drove the baby and I down and watched the baby while I was in my appointment, getting my infusion and getting my MRI. Thank goodness she loves him!
My results came in and sure enough there are new and active lesions (scar tissue) in my brain. It just blows my mind how quick it can happen really! So I will go in for 2-3 more steroid infusions this week and perhaps an oral taper. Hopefully no oral taper though because you can’t breast feed on them.
Which brings me to my biggest disappointment to this whole thing! I have to go back on a drug for my MS which means I can’t breast feed anymore. That is coupled with not going back on my Tysabri because it isn’t documented as ‘safe’ for women trying to conceive and the doctor doesn’t quite feel comfortable if we try to conceive again. Probably because I got pregnant on it with this baby! Whoops 🙂
He did say that Copaxone is a class B drug for pregnancy so that is the one he is leaning towards to try out. I am still unsure if he will let me continue breast feeding on it just because there isn’t enough documented cases so the end results are very unsure. What a drag in more ways than one because this is a shot I have to give myself instead of an infusion! Boo.. but he is worth it right?!
Michael did Google Copaxone and breast feeding for me and according to some pharmaceutical book the molecules are too big to pass through breast milk. Even with that I am just fully sure if I feel comfortable putting with the chance that he will be in contact with a immuno suppressant drug. Oh the joys of motherhood I guess!
So I will continue to be MIA on here until further notice…