MANAGING A RELAPSE WITH STEROIDS

It all began on February 5th…

That Thursday will likely haunt my dreams for quite some time. It will serve as the traumatic reminder that I am dealing with something very real despite looking ‘normal’. I might not let Multiple Sclerosis define who I am but it sure plays a large and in charge role in my life.

Michael and Maverick at the Institute for Neurological Disorders during my steroid treatment

The first day of steroids was emotional to say the least. I took my time with our final nursing session before our three day pump and dump began. I fought tears the entire drive to the clinic and my mother in law talked about who knows what. I was numb and just wanted to stare out the window.

The nurses put me in a chair that allowed for plenty of privacy (More for the patients than me. You know I’m not modest.) so Maverick could settle into our unfamiliar location with a few guzzles from my breast as they started the iv. I owed him that much and he thanked me with a poopy diaper. So, with my limited mobility, I changed his diaper and made him a bottle.

PROVING TO MYSELF THAT MOMS ARE CAPABLE OF ANYTHING WHEN IT COMES TO THEIR BABIES.

Three days of steroids did nothing for me.

https://www.instagram.com/malleryschuplin/?utm_source=ig_embed&ig_rid=a487cb05-a182-44c0-bd5d-19983c23d3ff

Fast forward to the 27th…

I have now had 8 rounds of iv steroids and will start a 7 day oral taper to tide me over until my appointment on March 9th. I feel stronger but I know all too well how short lived steroid protection can be. Not to mention… the false sense of confidence that anyone stuck on bed rest clings to when things get a little better. I want to move around. I need to move around.

I shouldn’t move around.

My appointment has come and gone without a real treatment plan. And, as I continue to wait on Blue Cross to decide whether or not I should be on Tysabri, I’m reminded of how shallow my energy pool is. I can feel my balance slipping away again.

I guess that means I get to keep enjoying my steroid candy diet without guilt? Silver lining, amirite?

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